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Friday, December 24, 2010

Our little present

  The week didn't start off so great. Tyce woke us up tuesday morning around 2:00 am with this horrible noise we had never heard before.  TJ and I bolted out of bed because he literally sounded like he was suffocating.  I vicksed him up and blasted the humidifier on.  I really was nervous, I thought his throat was closing, he had a horrible cough. I, like I usually do when I am in a panic WEB MD'd his symptoms and it read like croup.  It said you can usually remedy it at home, so I decided I'd wait it out.  So  I held him the rest of the night closely, praying he'd be ok.   And I decided to take  him into the ER the next day because nothing seemed to get better.  They did diagnose him with croup (which by the way is a super scary noise) and baby bronchitis. He was placed on a nebulizer and inhaler with some meds.  This is what he looked like two hours after we came home from the hospital.



He looves his puppys! Our Pit Bull and him are best buds (were here to change all kinds of stereotypes).  


He loves his toy puppy too :)



  So he ended up trooping it out and not complaining a whole lot :)  He just wanted to keep playing and having fun.


  Next day we went to Grandma Matchinsky's house and Tyce got to ride his dad's walker from when he was a baby!



                                                          He loves his daddy's walker




  And the rest of these are moments of our life, the life we choose to fully live and enjoy!                       Because, how can you not enjoy this smile? 




                             He's such a happy baby and loves bath time, even with bronchitis. 

  Tyce wishes you a very merry christmas.  He has made our Christmas ten times better.  He makes me so high on him sometimes :).  Keep givin it to me baby!










With the past, I have nothing to do; nor with the future.  I live now.  ~Ralph Waldo Emerson


Merry Christmas!

Saturday, December 18, 2010

Flips and flops

  It was a super tough week.  One of those weeks where I looked at the calender and wanted to just take a nap.  It was my last week of school.  I still can not believe I did it, I can't believe I went back to school just three months after having Tyce and finding out about his diagnoses.  Going back to school seemed like too much work, too hard and over all too much.  But, I did it! No, it was not easy but I had great help.  My father and mother in law would come over every Monday and do shift changes until TJ got home and then I would be home by 10 at night.  So Big thanks to them and to my sister Evelyn for picking up Ty when I needed to write a paper.  When people have such a big heart to come to your house and pick up your little boy and love him for you for a few hours to re-coop and be a better wife, mama, and student mean so much to me!

  Any how, someday down the road when I graduate and I think how did I do that? I want to remember those people that helped me do it. So I will look back at this little post and once again say thanks :)  Oh and need I not forget the man that pushed me to continue, he wanted me to not stop and not give up on my dreams, oh the man he has become makes me fall in love with him over and over again! I love you husband :)



  Ok, so that was Monday and now Tuesday ty got his six month shots I put him down on the the table to get ready for the nurse and he turned him self over from back to belly, what happened, where did my little infant go???  I freaked out and ran back to him, I hadn't seen him do that before.  I guess the days of just leaving him on the couch or bed for a few seconds are OVER he rolls, flips and flops :) Oh  and he ran a fever with his shots, is that normal? Ughhh :/ poor baby I had to hold him all night long!

I love to watch you sleep little bug!




Can you catch me?


And I love the way his grandma LOVES him, no doubt about it :)

  And man he loves her too :)



And his big cousin Cam came over to watch him, feed him and photograph him like always :)


And he sits so BIG :)


  Lastly the sweet nurse from the Down syndrome association of West Michigan came for his first home visit and she thought Tyce was great, cause dude he is, not just cause he's my kid but so far he's been such a good baby!  She fed him and played with him and was sooooo helpful.  Seriously any other mamas out there that have babies with the extra piece of love, living in W. Michigan need to have this lady come over.  She is sheer genius about babies :). We love Miss Mary, she spent one whole afternoon with us and we learned soooo much thanks dsawm!



Until next time :)  Looking forward to our babes first Christmas!!!  Many pictures to come im sure!

Sunday, December 12, 2010

We got more bounce!






 We had the opportunity to go out and have some adult time while Ty stayed home with Grandma and Grandpa.  We were invited to a new friends house for a Christmas party.  It was wonderful, i got to meet a few new moms of baby's with Down syndrome and they all happen to be in their 20's when they had their child with the DS. They are strong, beautiful, empowered women and being in  their presence I was able to soak in so much, learn so much about our baby's extra little chromosome.  I just want those women to know that I truly cherish their friendship, love and support on our journey in raising our beautiful babies.  I just feel lucky to have met down right some of the most genuine women in this world!  Shout out cause you know who you are! woot woot!


And our saturday started with some Ty morning fun! 






Mommy I just LOVE to BOUNCE!






Good Morning!
My dad reading to me :)


 And Ty and I got to get a picture together before we left for our night out. Baby I could just hold you all the time, I love you!


   And so it's early Sunday morning and I get a call from my second oldest sister Evelyn, she says: " I have to ask you something and you can't say no" I say Ok, so yes.... She says "Im coming over in an hour and Im dressing Ty up for the Virgen de Gudalupe celebration mass today at church.   Obviously I already said yes, so along she came an hour later and this is our Little Juan Dieguito :)
Oh and Feliz Cumpleanos Madrecita!





Diego out!

So fun and so pooped we all are. And tomorrow is my last class of the semester, I can't believe I made it thru!  I'm out too to hit the books while my little Diego is napping! Much love!

-D


Thursday, December 9, 2010

Mmmm....

   Funny I insist he is telling me when he is hungry he always says mmmmm.... mmmm.  And I caught him on his bumbo reaching for his very empty bottle, he snatched it right up and was disappointed at it's emptiness.  Now everything is so new to me, I mean I am a first time momma and I have little or no expectations. I am completely going with this whole parenting thing as I go, meaning I have no idea what to expect. And of course I am parenting a baby with special needs which is also out of my element and lets be honest I don't know what I am doing.   Truthfully I threw out all those milestone books because afterall I don't know what he will or won't do and when he will do them because I truly feel he will do most anything cause he is STUBBORN.  I figure he will do what he needs to do at his time and if their is anything I can do to help him by golly I will!  So I am a Rookie...   But I do know one thing I have a rockin momma that raised six girls and has helped raise 11 grand kids.  So, when Ty got sick a few weeks ago and wouldn't eat for a few days I didn't know what to do but call the one lady who I swear has the cure   for just about anything.  She home made my baby rice water and helped hydrate him right up to health, and Im not jokin when I say he wouldn't eat and if you have seen Ty he is, well stocky!  She is an amazing grandma and momma and her little remedies even if filled with sugar cured Ty right up :)

 So I added a picture of Grandma Chelo  the reason why your middle name is Coronado, let me tell you, my mother is an entrepreneur she is the American dream :) She is in this picture with her number 1 grandson and her number 12 grandson :) (Ricks a cutie huh?)



And on that note... I just had a to take a few pics of Ty's morning feeding's, his little mmmmm's...




And Im done...



Cute Huh?

Oh and Momma had to get a picture of Tyce in a basket because I had to get cloths ready for his six month pictures.
Get me out of this thing

 So on with not exactly knowing what I am doing, and like I said I do know one thing I have great people in my life that make this scary, exciting, sometimes overwhelming journey what it is.  You are to bloom where you are planted, even if you are placed in the most scariest, driest desserts you find water or the sun and you make it shine on you!  So shine on :)

Tuesday, December 7, 2010

Designer Genes

 Seriously this guy is a stud.  After all the appointments we had to go to last week he always maintains his limitless attitude, its like he is telling us "you know what guys they want me to ware an eye patch, I will, and I will own it".  Heeeyahhhhh....


We went for his six month eye check up and he has a small lazy eye and has to wear an eye patch every day half an hour for a month :) Other than that things are looking good, he pulled out all his eye sight tricks for the optometrists.


ENT went well too, he has a little fluid in one ear that will hopefully drain on its own.  If it doesn't  drain then possibly tubes, so all in all not bad.  They said he hears great! And my goodness Tyce is a hit with all the nurses at the ENT office, they get so excited when he comes in, next time I will take my camera :)

And today he flirted with Miss Sondra his OT, he loooves her!  He saves all his new stunts for her.  She said he is doing very well.  He is reaching, sitting, holding toys with two hands and smilling like crazy!  He got a visit from his beautiful cousin Cami today and every time she took a picture of him he just smiled at her :)  Ty is her lifetime model.
Add caption

Musician like Grandpa perhaps?





Tuesday, November 30, 2010

Happy Half Birthday Ty!

   And because it is your half birthday, I wished you a very happy birthday a gajillion times :) You are the hope I cherish I love you so much my little bear! I thank you so much for letting me spend six months with you! We met daddy out for lunch so I bundled you all up!  I can't believe it was six months ago that you were born, six months ago that I felt my life was turned upside down, little did I know than how much upside right you have turned my life!



And these days Ty is full of funny faces, I just love them :)

He is saying kiss me right here :)

Lastly he is starting to sit all on his own with out much help (of course we are not to far away, his little tumbles down still hurt his momma a little bit)
SIX MONTHS YAY!






 Well Christmas is 26 days away and our tree is up and this will be our first Christmas together, im just way more excited than years past!

   And Ty is back to his regular PT appointments this week (he had missed two weeks due to not feeling his greatest).   And  by friday we should get the full results of his BEHR hearing tests.  When Ty was born his right ear referred and a month later he passed, then three months later he again referred his right ear. So moving forward his hearing will have to get checked every year, we are certain her hears fine, we think he already has selective listening :) .   Two weeks ago he was under some sedation to see what was going on in that ear, they wondered if their was fluid... friday we get the full results from his ENT.



Sunday, November 28, 2010

His Birth story

Well I am starting this blog to document some of the life of Tyce.  A sneak peek into our lives and the journey we have been on the last six months of his life.

I have been meaning to do this for so very long, but haven't found the time, courage, energy that it takes to explain the best, scariest day of my life.  But here it goes...

Let me start of by saying Tyce has been the greatest gift to TJ and I we love him with all our hearts and we loved him before he was born. I remember being 8 months pregnant and walking into his room and reading the plaque that we put above his beautiful chocolate colored crib that said "I AM A CHILD OF GOD''.  I remember thinking to myself, I know he is going to be perfect our tests all came back perfect he has no abnormalities.  But even if he did, even if he was wheel chair bound (nothing wrong with that) or had anything ''wrong'' with him I don't care as long as he has a relationship with God and he knows that Jesus died for him. And if he ever needs anything God will ALWAYS be there for him and so will his momma!  I cried those tears a month before I knew, what would happen the day after his birth.  (And not once had it crossed my mind that things would turn out any different then I had imagined).


  Fast forward, and two weeks before my due date which was to be June 5th my doctor was telling us that Tyce was getting to be too big for my little body and if he didn't come soon, I would be induced.  Tyce was going to be an eight or more pound baby and I was 110 pounds when I got pregnant.  So I got to walking everyday, I even walked the Laketown stairs the day before I got induced just so I wouldn't have to get induced ( I was scared),  and boy we kicked those stair's ass Ty and I :).  Still nothing,  and my doctor told me I needed to come in that next morning because it was time for him to come out. In reality, I was so ok with it, I was ready to be done being pregnant and I wanted to see what this little peanut looked like!
  TJ and I could hardly get any sleep the night before, our long awaited journey to see our precious little boy was almost here! We got up bright and early that morning and took off for the hospital where my induction began.  Dr. Gootjes broke my water at 9:00am and by 1:00 pm my contractions started really hard, I pleaded for that epidural, and of course it was a holiday so the anesthesiologist was out  of town and it took longer then expected to get my much needed epidural. Finally it kicked it and I was quickly dilating.   At 4:00 pm I was told I was dilated to 10 and ready to push,  and with three hard pushes Tyce Coronado came out at 4:41 pm.  TJ wouldn't leave my side he wanted to make sure I was ok,  and I told him to go make sure everything was ok with the baby he didn't know what to do (just like him to not want to leave my side and make sure I was ok).  Everything seemed perfect, he weighed 7 pounds 11 ounces and measured 20.5 inches and somehow I knew something was different.  I had seen a few of my sisters have babies and I just knew something was different, but I didn't know what it was.  His eyes were definitely slanted but,  so are his dad's but Ty's were even more then I had pictured.  But, I didn't think too much about it, I held him, I loved him so much.  The three of us enjoyed the few moments after Tyce was born together. Then those who waited for his birth in the lobby came in and just swept him with love!
The first time I held him


  Morning came, as we began to get ready for the rest of our visitors the hospital pediatrician came in for her routine check before babies get to go home.  She came in, did not  introduce her self and began inspecting our little baby. She stopped for a second looked at me, looked at TJ and just said the words, the heaviest words I had ever heard... "I am testing him for Down Syndrome, he has some features that make me believe he might have it, but... I don't think so, I will let you know in a couple days when the test results come back".  WHAT!!!  TJ and I both looked at each other like are you crazy???  I think we said Lady, come back here! what is this that you are saying to us?  and how do you just plant that on brand new parents, like your telling us he has a cold.  To her it may have been like telling us he had a cold, one that would never go away and we would just have to deal with it (at least that is what it felt like).  I didn't know what to do, what to say, I think TJ and I sat together with Tyce in silence for the next few minutes.          I convinced myself that this couldn't be.  But, in my stomach I had that gut feeling that it was something. I kept asking the nurses to hurry with the preliminary results, they said they were sent to DeVos and we would soon know.  Our final day at the hospital came and that morning the results came in.  TJ had run home to shower and I was in that room, in those walls that I so vividly remember. I was with Tyce and my mother in law, my sweet mother in law never left our side.  The same doctor that had initially checked him came in with the results.  The preliminary results showed a third 21st chromosome, Down syndrome. My  heart sank, I felt like I couldn't breath. I was asked if I had questions, and I told her I had a million freaking questions.  I was mad, I was angry, I was scared, I was sad, I felt robbed and maybe selfish.  I knew nothing about DS other then a bunch of society's misconceptions.  I immediately called TJ like 200 times and of course he was in the shower, finally getting a hold of him, I told him he needed to come to the hospital, upon arriving he saw my face, he knew.  I called my mom and she called my sisters and they all came in, our troops, our army was there ready to combat for all of us, for Tyce! I could just feel in my soul how much my family meant to me, how much I pleaded with them to not leave us alone, I don't know why I would say that, I just looked at there faces and I knew, I knew that each one of those people in that room would NEVER leave us alone, that we would always have them.


 This was a picture of me, leaving the hospital with troops behind and the husband swinging the car around.They told us we could take him home on that third day there, they handed us a Down syndrome resource book and sent us on our way. Shortly after we left and the leave was nothing like I had imagined, I was blank, I was numb, I felt like everything was going to have to be different forever, I was so lost.
  We came home, we bonded with him, we loved him, that was easy.  We had many doctor appointments that were hard, we were constantly reminded that our first journey into parenthood was different.
 The next few weeks were a blur... we anticipated the final results of his diagnoses,  by then we kind of knew and we were soaking it all in.  It was the weirdest experience ever, something hard to explain, I wish some things would have turned out differently, perhaps the way we found out.  But then again we wouldn't be where we are today, and we wouldn't be as strong as we are.  We are fully enTYCED, our little man has BLOWN us away.  We have a completely different image of what Down syndrome is. Society has a misconception, because if you met my little guy you too would be blown away!  He luckily has a healthy heart, and every other major organ seems to be working great (babies with DS tend to need heart surgeries and may have other complications, but nothing that can't typically get fixed, and hey all babies can have these problems too).  He is sooo much more like us, and all of my nieces and nephews then he is different. Of course there has been struggles.  He has needed to get EVERYTHING checked, Eyes, Ears, Nose, Throat, Heart, Lungs, Kidney's, Blood and most everything is checking out.  He is a fighter just like his tias :) we love you Tyce and this is your story. Your mom has come sooooo much further from that day she took you home from the hospital.  That day she was scared, scared for your future scared for tomorrow, today she is not scared any more, she can't wait to watch you continuously grow.  Your mom and dad love you more than anything, we love all 47 of your chromosomes little man!  You were always this Tyce and would love this Tyce!